November 17-19, 2017

Hosted by International Rett Syndrome Foundation, FACT (Family & Community Together) and Palladio Group

A weekend workshop for parents of children experiencing Rett Syndrome. Come learn from subject matter experts and other Rett parents. You’ll break bread together, rest, talk, and have access to people and resources who can help you navigate life with Rett Syndrome.

 

 

 

Program Fee $120

Meals & Lodging $125 (5 meals, 2 nights lodging in shared rooms)

If you are registering and paying both parts (Program Fee and Meals & Lodging) begin with the “Pay Program Fee” button. After the form into which payment information is entered, another page will come up and a link to pay for meals & lodging is available. You will need to enter payment information again.

 

 

 

 

Date/Time Activity
Friday 11/17/2017

5:00 pm

Welcome/Check-in

6:30 pm

Orientation

7:00 pm

Dinner

8:00 pm

Ice Breaker Activity
Saturday 11/18/2017

8:00 am

Breakfast

9:00 – 9:45am

Research Update

10:00 -11:30 am

Life Care Planning/ABLE Act

12:00 pm

Lunch

1:00 – 3:00pm

FACT Presentation

3:00 – 6:00 pm

Free Time

6:00 pm

Dinner

7:00 -9:00 pm

Game Night/Social Time
Sunday 11/19/2017

8:00 am

Breakfast

9:00 -10:00 am

Nature Walk/Hike/Yoga

11:00 am

Checkout

 

 

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